Social, educational and community support for people with autism. A systematic review
Keywords:
Autism spectrum disorder, integration, community, families, inclusionAbstract
The community and society in general play an essential role in the quality of life of people with autism. This can have a significant impact on these people living a long and full life as independently as possible, once society supports their active participation and inclusion. This study analyzes how social, educational and community support positively influences inclusion and quality of life through raising awareness and understanding of autism spectrum disorder. The systematic review includes articles published between 2019 and 2024. The PRISMA methodology is used to distinguish relevant studies. The studies reviewed underline the importance of social, educational and community support for people with autism, which has an impact on inclusive environments and respect for diversity. As well as the need to implement effective communication strategies that educate the population about neurodiversity and the need to offer early support. The systematic review reveals that there is still a lack of professionals trained to provide comprehensive support, where coordinated and collaborative approaches that combine education, awareness and the creation of inclusive environments that integrate professionals, families and the community are implemented.
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André, T. G., Valdez Montero, C., Ortiz Félix, R. E., & Gámez Medina, M. E. (2020). Prevalencia del trastorno del espectro autista: una revisión de la literatura. Jóvenes en la Ciencia, 7. https://www.jovenesenlaciencia.ugto.mx/index.php/jovenesenlaciencia/article/view/3204
Bent, C. A., Aulich, A., Constantine, C., Fidock, E., Dwyer, P., Green, C., Smith, J., Gurba, A. N., Harrington, L. T., Gore, K. E., Rabba, A. S., Ayton, L. N., Fordyce, K., Green, J., Jellett, R., Kennedy, L. J., MacDuffie, K. E., Meera, S. S., Watson, L. R., Witehouse, A., & Hudry, K. (2024). Autistic and autism community perspectives on infant and family support in the first two years of life: Findings from a community consultation survey. Autism, 0(0). https://doi.org/10.1177/13623613241262077
Cedeño, B. J., & Sánchez, L. (2024). Las estrategias comunicativas que mejoran la inclusión escolar y social de los niños con trastorno del espectro autista. Uniandes Episteme, 11(3), 413–425. https://doi.org/10.61154/rue.v11i3.3546
Celis, G., & Ochoa, M. G. (2022). Trastorno del espectro autista (TEA) . Revista de la Facultad de Medicina, 65(1), 7-20. http://doi.org/10.22201/fm.24484865e.2022.65.1.02
Finch, T., Mackintosh, J., Petrou, A., McConachie, H., Le Couteur, A., Garland, D., & Parr, J. R. (2022). We couldn't think in the box if we tried. We can't even find the damn box: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults. PLoS One, 14(3). https://doi.org/10.1371/journal.pone.0264932
Mardones Carvajal, S. N. (2024). Diseño inclusivo y el diseño de información como aliados en el desarrollo de apoyos para las personas autistas. Cuadernos Del Centro De Estudios De Diseño Y Comunicación, (225). https://doi.org/10.18682/cdc.vi225.11267
Mira, Á., Berenguer, C., Baixauli, I., Roselló, B., & Miranda, A. (2019). (2019). Contexto familiar de niños con autismo: Implicaciones en el desarrollo social y emocional. Medicina (Buenos Aires), 79(1), 22-26. https://www.scielo.org.ar/scielo.php?script=sci_arttext&pid=S0025-76802019000200006&lng=es&tlng=
Moreno, B., , Muñoz, M., Cuellar, J., Domancic, S., & Villanueva, J. (2018). Revisiones Sistemáticas: definición y nociones básicas. Revista clínica de periodoncia, implantología y rehabilitación oral, 11(3), 184-186. https://dx.doi.org/10.4067/S0719-01072018000300184
Ortiz-Delgado, D. C., Ruiz-Sánchez, M. E., Baidal-Tircio, R. O., & Figueroa-Cruz, M. (2024). Efectividad de diferentes intervenciones psicosociales y terapias conductuales para niños con autismo en Ecuador. Revista Científica Arbitrada En Investigaciones De La Salud GESTAR. ISSN: 2737-6273., 7(14), 83-96. https://doi.org/10.46296/gt.v7i14.0156
Page, M. et al. (2021). Declaracioón PRISMA 2020: una guía actualizada para la publicación de revisiones sistemáticas. Revista Española de Cardiología, 74(9), 790–799. https://www.revespcardiol.org/es-declaracion-prisma-2020-una-guia-articulo-S0300893221002748
Pentón, A. (2019). La comunidad de los niños con autismo: camino hacia la concienciación social. Revista Mapa, 3(16), 1-11. http://revistamapa.org/index.php/es/article/view/144
PRISMA Statement. (2020). Sitio Oficial. https://www.prisma-statement.org/
Rodas, R., Franco, N., Rodas-Jara, L., Franco, F., Gómez-Leiva, E., Villalba-Salinas, D., Chromey, N., Torales, J., & Báez, D. (2023). Apoyo, desafíos y oportunidades de una persona con el trastorno del espectro autista en Paraguay: Análisis desde la perspectiva de los padres. Revista Científica Ciencias de la Salud, 5. https://doi.org/10.53732/rccsalud/2023.e5108
Simpson, K., & Adams, D. (2023). Parent-reported environmental factors and strategies to support home and community participation in children on the autism spectrum. Disability and Rehabilitation, 46(17), 3970–3979. https://doi.org/10.1080/09638288.2023.2261843
Weiting, D., Crane, L., Haar, T., Heyworth, M., Poulsen, R., & Pellicano, E. (2024). Reporting community involvement in autism research: Findings from the journal Autism. Autism. https://doi.org/10.1177/13623613241275263
Wigham, S., Ingham, B., Le Couteur, A., Wilson, C., Ensum, I., & Parr, J. R. (2023). Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians. Autism, 27(2), 344-355. https://doi.org/10.1177/13623613221097502
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